Going forward, the lights may as well be off. Karl was home from work when we got to the house, and he and I showed Sooki around. Death was the river that ran underground, always. As it turned out, Sooki and I needed the same thing: to find someone who could see us as our best and most complete selves. It doesn't say, go get a sack of Pepperidge Farm. Im a good packer. She told me she had packed for good cheer, having had the reasonable expectation that times would be hard and cheer a necessity. Tom and Rita were back from Australia. I just cant stand the thought of being so disruptive to your and Karls (and Sparkys!) PATCHETT: Well, thank you. Here is a non-fiction account from Harpers magazine, by the novelist Ann Patchett, of how she met Tom Hanks, and through him got to know his personal assistant, Sooki Raphael. In the twenty-six years that Karl and I had been together, Id never had the experience of coming home to dinner being made. I saw her as an artist. How it happened is told in the title story of These Precious Days, [] Im in Albuquerque shooting a movie. (I say this as someone who is spending my days trying to write about our friendship and what happened here. Pancreatic cancer is an aggressive disease that is difficult to detect because symptoms including jaundice and weight loss typically present at a later stage in the cancers development. I must have dropped it. Once she gets here and sees the way things are, shell be fine.. As the warning sirens kicked in at four in the morning, only Sooki was awake. I didnt know how the story would end. "Primarily and in her soul she was an artist." I was copied on a barrage of emails I had no business reading, reports of molecular profiling, adenocarcinoma, tumor tissue for genetic analysis. In the press release for the exhibition, ROSEGALLERY said her works used her colorful palette as an expression of a renewal of spirit and life as she healed alongside the scorched landscape of the Malibu and Topanga hills.. is the author, most recently, of The Dutch House. She liked to fly. I went by myself. She could be a nun. Sister Nena picked up a piece of bread and swiped it through the olive oil in the saucer between us. She started a kids clothing business. When was she first diagnosed with pancreatic cancer? Sooki of the magnificent coat. Three blue tattoos on the same plane as my prominent abdominal scar, it would hardly matter. I had met Sooki, after all. She didnt know. I pulled up my eye mask. I had gotten up in the dark to make stacks of sandwiches. I sent you another book that will show up eventually, a tiny French novel I love called The Lost Estate (Le grand meaulnes) by Alain-Fournier. But you write that what you loved was finding someone who sees you as your best and most complete self and that she did that for you, and you think you did that for her. My breath was roaring now, in and out, my lungs enormous bellows that would not tolerate my death. She traveled the world as the personal assistant to one of Hollywoods biggest stars. I told her as much. I didnt understand what it was, but something was in the air. She painted her granddaughter striding through a field of her own imagination, she painted herself wearing a mask, she painted me walking down our street with such vividness that I realized I had never seen the street before,Patchett wrote. When we got home from our walk, I emailed Sooki and said that if she wanted Karl to check on the possibility of a trial in Nashville she should send her medical records. Then came the moment one feels on a roller coaster just as the bar locks into place and the car starts to pull up, the body pressing back into the seat, knees out ahead, and you think, Wait a minute, was this the best. He told me he was going to take his grandsons to the river to go boating. dec. 27, 2019: Sweetest Ann, I am traveling todayjust for the dayup to Stanford for a second opinion, with the magicians elephant in my carry-on bag. Where I was going was death. When she gave us the painting she had done of Sparky on the back of the couch, I felt as if Matisse had painted our dog.. It looks like a little purse on a long strap?, I asked her if she could have left it on the plane, but no, of course not. UCLA would fold her into their trial, everything seamless. Everything was lined upexcept Sooki didnt want to go. She and Ken put what mattered most in the car and started driving, waiting to see which way the wind would shift the wall of flame. Ive got to take care of my nun, I told him. With many creative endeavors - from clothing to ceramics to a long career in the film industry Raphael has contributed to numerous projects, busily attending to the arts through a multiplicity of avenues. She had felt their love and heard their voices while I was hacking up snakes in some pitch-black cauldron of lava at the center of the earth. This was not a two-hour journey. Like a Cessna? Sooki arrived in Nashville on Sunday, February 23, just after Kate left. We will never know all the things other people worry about. What a good idea. I had interviews scheduled all day on Tuesday, Sooki had chemo on Wednesday, and my friends were leaving for California on Thursday. We went back and forth. Suffice to say the car I was strapped into followed a tunnel down into dark and darker colors, narrower spaces. This whole time Ive gotten it wrong. Love became Much love. While other people were left to worry about a virus that may or may not have been coming for them, I worried about Sooki. The title essay focuses on Patchett's friendship with Sooki Raphael, Tom Hanks' personal assistant, who spent the early months of quarantine in Patchett's Nashville home while receiving. They reviewed her records together. Add a Profile More Hide Episodes Title Year Update Role Assistant: Mr. Hanks Bridge of Spies (2015) Motion Picture Assistant: Tom Hanks Saving Mr. Banks (2013) Motion Picture Assistant: Mr. Hanks Cloud Atlas (2012) Motion Picture Assistant: Mr. Hanks Larry Crowne (2011) Motion Picture Assistant: Tom Hanks I wanted to go to bed and read. But she could. Maybe its the trial, she said, but I think it could just as easily be the food and the yoga.. assistant (as Susan 'Sooki' Raphael, Mr. Hanks) 2012 Game Change assistant (Mr. Hanks) TV Movie 2012 Larry Crowne assistant (Mr. Hanks) 2011 Big Love assistant: Tom Hanks assistant: Mr. Hanks TV Series 2006-2011 48 episodes The Pacific assistant: Mr. Hanks (Mr. Hanks) TV Mini Series 2010 7 episodes Where the Wild Things Are assistant (Tom Hanks) We would have dinner whenever she was ready. PATCHETT: Every single thing was from scratch. By the time individuals walk into the clinic with symptoms like jaundice, weight loss, back pain or diabetes, its often very late in the stage of the disease., RELATED: Increased Thirst and Dark Urine: Researchers Reveal Two New Signs of Pancreatic Cancer As Cases Increase Over Last 18 Years, Detecting Pancreatic Cancer Early Is Crucial. An epilogue describes how before Sookis death they manage a day on the beach and a celebratory exhibition of her paintings. Subscribe to the World edition here. Raphael is Tom Hank's assistant and friend. Ours was an ephemeral connection common to the modern world, writes Patchett. I was in deep mourning for the loss of my best friend, and while I was and still am in shock, I could not ask anyone else to write this tribute. Patchett said she loves her home in Nashville with her doctor husband and dog. The three of us were standing, back of the theater in the dark. There are so many things I understand now, she said. Join The Spectator community and view or post a comment on this article. He has me repeat my name, birth date and area of radiation each time before I enter the room. There was no other reason for me to be going on the cancer patients journey. Shes married, I said. Of course we are.. NPR transcripts are created on a rush deadline by an NPR contractor. She lugged her suitcase out to the car without my knowing it. He would tell me how lucky we were, the three of us together. Find contact's direct phone number, email address, work history, and more. And it's so unexpected to come across a friendship like that at this point in life. I could already see her tumbling down the street. It's about Patchett's unexpected friendship with Sooki Raphael, Tom Hanks' personal assistant, which developed when Raphael underwent chemo treatment while living at Patchett's house in Nashville at the start of the pandemic. Later that day we sat side by side on our yoga mats, Sookis head wrapped artfully in a scarf. Her love and passion and beauty will continue to live in her paintings, and in all of us who were privileged to have entered her world. Because I was trying to protect myself. Your hike looks gorgeous and loaded with spiritual component. And this led to you meeting Sooki. She and Tom would walk in the desert in the early mornings and she would feed him lines from a script while he memorized his part, cobras skating through the dust just in front of them. They were lucky to get up in the morning to fly across the country so Sooki could have a pancreaticoduodenectomy, also known as a Whipple procedure. Ann Patchett one night happened to read a short story by the actor Tom Hanks, surprised by its literary quality. I had told her the make of my car, and she waved when I pulled up in front of the airport. He told SurvivorNet that after losing his wife, Alice, to a two-year battle with ovarian cancer, hell never really get over losing her, but he does hope to move forward. But the clinical trial she needed was here in Nashville at the hospital where my husband worked. How was that possible? I was grateful. Now that things were going right I felt the jolt of just exactly how wrong they could have been. I tried to find a place for this new fact in the equation but all I could come up with was the obviousI didnt know her. I had pictured her going through this alone, a conclusion I reached on account of a lack of information and a florid imagination. The story has started without my realizing it. PET scans) were showing no sign of disease. Somehow I imagined that she had mentioned she was in a clinical trial in Nashville but not that she was living with us, which didnt feel like too much of an evasion, seeing as how she managed to live with us in the quietest way imaginable. Sparky Walks the Neighborhood with Ann, Nashville 2020. People were dancing, laughing, and so she went outside. She joined the ships crew. may 31, 2020: Ive already worked out this morning. The sky had turned a tenacious gray, the rain sheeting sideways. Sooki Raphael is Tom Hank's assistant and friend. What about the children who were left behind in that house she hated? I try to keep all the parts of my life separate.. I asked her about her trip to Stanford for the biopsy, her flight to Nashville. In return, she sent me pictures shed taken of Los Angeles, a woman in an orange sari sailing past a city bus on a bicycle. I hear you, and I know that if I were in your shoes and you were asking me to stay with you it would seem impossible. Karl spent a huge amount of time studying weather as part of his instrument-rating prep. I cant sleep through it.. The CA 19-9 had gone from 2,100 to 470. Sooki hadnt lost weight but she was losing her ability to project her voice. Remember in the future not to make assumptions. Did you have a hard time?. She brought her paintings upstairs to show us: a person who was too shy to say good night most nights was happy for us to see her work. On the first Sunday in May, in the late afternoon, a storm kicked up, not expected but not a surprise either. He thrilled them, buying stacks of books, signing books, posing for pictures, going next door to the Donut Den for an apple fritter. Patchett writes. This is the way novelists think: beginning, middle, and end. This is what its like to write a novel: I come up with a shred of an idea. You can be certain that she loves the job. I had to listen to what she was telling me. Now I knew several people who were using them as part of therapy. Sookis a pilot! Karl said. All the messages were about Tom and Rita. Later, she asked him if hed be willing to record the audiobook of her latest novel, The Dutch House. When he agreed, she began a protracted email exchange with Raphael to work out the details. I should have planned better, she said. Do you even realize your life isnt normal? Niki said when I announced my trip. I didnt know what I would have done in her place, but I imagined that upon getting the news of recurrent pancreatic cancer I would go see my lawyer and settle up my tab with the house. Sookis loving memory will live on in her husband Ken Wheeland, son Cody Wheeland, his wife Sara Wheeland and their children Anja and Oliver, her daughter Alison Villalobos and husband Luke Villalobos, her mother Miriam Raphael, her sisters Judy Raphael and Ruth Raphael, her stepbrothers Michael Fishman and Philip Fishman, and stepfather Ted Fishman an amazing circle of friends and extended family. Once a pilot, always a pilot. Because then, it won't just be me; it will be the entire world of people in my head. Wed stood together in the dark of a Washington theater for a matter of minutes a year and a half earlier. At her first meeting with Hanks, Patchett also met his personal assistant, Sooki Raphael, whose unusual evening coat, its huge peonies . Ive heard writers say that they write in order to discover how the story ends, and if they knew the ending in advance there wouldnt be any point in writing. She had wanted to study painting in college but it all came too easilythe color, the form, the techniqueshe didnt have to work for any of it. The day I picked up Sooki from the airport in February she told me she would need to buy dry ice for Wednesdays. ROSEGALLERY is presenting These Precious Days, a solo exhibition of paintings by Sooki Raphael, on view from 10 April until 10 May, 2021. He describes her as "someone who is all that is good in the world.". Her father was in the hospital and she had driven down from Kentucky to take care of him. Backstage, she met his beguiling assistant. There was no hesitation on the canvases, no timidity. The second time they came because Rita was singing at the Grand Ole Opry. We could all be boring together.. Its an honor, really. My official badge-carrying title at the New York City Department of Healths Bureau of Animal Affairs was public-health sanitarian. The badge would have allowed me to inspect and close down pet stores if I wasnt too busy catching bats. Painting fell into the category of what she meant to get back to as soon as there was time, but there wasnt timethere was work, marriage, and children. I am a huge fan of your work (and Toms, of course) and it just thrills me that you are collaborating on this! I wasnt suffering the crashing waves of anxiety that battered down so many people I knewthough two hours of daily yoga and meditation also contributed to keeping panic at bay. She told me she had gained back the twenty pounds shed lost after the last chemo but she couldnt have weighed a hundred pounds now. Sometimes I had to get right in front of her to hear what she was saying. A plane? Looks like were sitting on the edge of the apocalypse, Marti said, leaving her french fries on her plate. PATCHETT: Right. Am I the person youre talking to, or are you talking to someone else downstairs late at night? Sooki was married? All the people who love me and how hard this has been for them, the cancer. No one had ever been so welcome. There was a delicacy about her that was well-suited to baldness. After dinner that night, Sooki and I sat on the couch and tried to watch a movie, but her phone on its leash began to ding and ding and ding, insisting on her attention. In a previous interview with SurvivorNet,Dr. Anirban Maitra, the co-leader of the Pancreatic Cancer Moon Shot at MD Anderson Cancer Center, explains what he typically sees when patients develop this disease. Travel while staying at home! When I was very nearly at the end, I came to a beautiful lake, the kind youd see on a Japanese postcard, or my imagined picture of a Japanese postcard. I rose as I pressed against the floor. She took off her cap to show me the damage. Except it was Sooki, and I liked her very much. I asked her. As Sparky stopped and sniffed, I offered up Sookis recurrence as a story to tell, not a problem to solve. I had a purpose to serve. Get help here. There was an important piece of information that hadnt been made clear to Sooki when she came to Nashville; it was that, unlike the FOLFIRINOX, which had carved twenty pounds off her over twenty-four weeks, this course of chemotherapy had no end. I cant just stay here forever.. "They have it," she said. The more literary essays include an introduction to the stories of Eudora Welty (No writer I know of tells the truth of the landscape like Welty); pieces on book covers (I finally knew how to ask for what I wanted I would send my books into the world wearing the best suit of clothes I could find); childrens stories; sitting next to John Updike at a lunch at the American Academy of Arts and Letters; and perhaps my favorite, To the Doghouse, on literary influences. Her best friends lost everything in that fire. I had thought this was a story about Tom Hanks, the friendly actor-writer who had recorded my book, but I was mistaken. Thats been everything to me, and my life. I feel like I could pop into Trader Joes and have them replaced with those happy little stickers they hand out to well-behaved childrenit undermines my confidence in the sophisticated nature of the whole process just a bit. There was a six-hour playlist that the Johns Hopkins team had put together that was meant to somehow guide you safely through the experience. View Sooki Raphael's business profile as TH Assistant at Playtone. Sparky had crawled onto my chest and gone to sleep. Maybe I would find the fight in me, but I was never much of a fighter. She had worked for Tom for almost twenty years, and part of her responsibility was to go out on location before he arrived, find a place to stay in Morocco, get a driver, figure out the food, figure out what there was to see if there was any time, which usually there wasnt. Raphael found great beauty during a tumultuous time of her life and shared that beauty with others through her artwork. But a few months later, I got an email from Tom Hanks early in the morning. We climbed over branches, met an impasse, turned to walk another way. I was grateful for both of those things. I keep throwing things out. Sooki wore a leash as a child, the energy in her tiny frame too much for her mother to control. Sookis impending departure touched a memory I made a point of not revisiting: My sister and I flew from Tennessee to Los Angeles for one week every summer to see our father, and on the morning of the day we were going back to Tennessee I would start to cry. It was late and Id just finished the novel Id been reading. We headed upstairs to lie side by side on our yoga mats, deciding to disregard my friends advice about staying on separate floors. Its like a Nol Coward play but not as witty. He holds a kind of medical currency, saved then spent, and when needed, he can marshal all necessary parties into immediate action, bringing them together so fast that whatever needs to happen can happen yesterday. With every passing day I seemed less able to say, Do you want to talk about this? We looked in the car. I didnt worry about her embarrassing herself. I was impressed that first day when the therapists swarmed the table forming the mold around me and explaining about tattoos. Would he think to tell me if something had happened? Sooki and I needed the same thing: to find someone who could see us as our best and most complete selves, writes Patchett. The last few months, the oncologists were watching the numbers and Western medicine offered nothing to do but to wait and see where the cancer showed up. Shed scarcely left the house for more than three months and yet it was impossible to push the world back into the Mary Poppins suitcase. But now shes memorialized in author Ann Patchetts latest book. KELLY: Well, it's really, really true, so it was a pleasure to get to say it to you instead of just pining to my book club about how I wish you had another book coming out. I wonder, I said to her one night while we walked Sparky around the block, do you think youre a good assistant because youre a private person, or did you become a private person because youve been an assistant for a long time?. KELLY: And the timing of this - she comes to live with you while she's doing the treatment, and this turns out to be the beginning of the pandemic. She wasnt about to tell me she looked good, but it was clear what I was talking about. There are people here all the time. The spring was cold and wet and endlessly beautiful because of it. Sooki told me about evacuating for wildfires in the canyon where they lived in Los Angeles, a year and a half earlier, the night before she was scheduled to fly to North Carolina to have surgery. The title piece in the autobiographical essay collection These Precious Days by Ann Patchett is about her unexpected friendship with Tom Hanks's personal assistant, Sooki Raphael, who ended up living with Patchett and her husband in Nashville while enrolled in a medical trial for pancreatic cancer. Im afraid if I leave Ill never see you again, she said in a voice I could barely hear. Maybe Niki was right about my life being different, but maybe thats because I tend to think of things in terms of story: I pick up a book and read it late into the night, and because I like the book, I wind up on a flight to D.C. She said we could expect to be in the thick of things for an hour and a half, maybe two hours, with some residual effects for another three or four hours after that. When it. Once Im there for chemo, I will find a place where I wont be worried about being a good houseguest. Its a wonderful thing to be able to go back to something thats a couple of years old, see the flaws in the fullness of time, and then have the chance to make corrections and polish it up or in some cases, throw the whole thing out and write a better version., A second theme that emerges is the central role women have played in her life, from her sister, mother and grandmother to the nuns who presided over her K-12 education; the largely female staff of her Nashville bookstore, Parnassus Books; and classmates in college and grad school, including the late poet Lucy Grealy, whom she befriended at the Iowa Writers Workshop and later memorialized in Truth and Beauty., 'Reclamation':A Black descendent of Thomas Jefferson brings her ancestors out of the shadows, Not to say she gives short shrift to men. Still, she said, I cant help feeling like I should have done more with my life.. We went home and baked a spectacular cake that was especially well suited to travel. And she couldn't fly because the flights were canceled. Im doing the best I can to feel beautiful in this new body.. All resources were now directed at a disease that was not the disease Sooki had. The next day she brought up the vacuum cleaner to vacuum off her yoga mat. She had brought a squeaky toy for Sparky. Karl is not waiting on a thank-you note, I promise. A year and a half had passed since I had picked up his book in my office, and this was where it had taken me: Tom Hanks was willing to read The Dutch House. Patchett is so 100 percent a writer that you get the feeling that her life doesnt happen unless she writes about it. Out on the tarmac, I could see her again exactly as she was, resplendent in her velvet coat, her black beret. As I got ready to send the details of my second opinion, I was already looking to the third opinion and rethinking the story. 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